In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.

This activity will provide participants with the latest information on the status of the MP outbreak, including its origin, at-risk populations, efficacy of available vaccines, pain and symptom management, risks of delayed diagnosis and mortality. Emerging research on MP prevention and treatment interventions will also be discussed.

Health equity is achieved when every person, regardless of race, place, or circumstance, has the opportunity to live their healthiest life. Some of the known barriers are referred to as Social Determinants of Health (SDoH) and are determined by the conditions in which people are born, grow, live, work, play and age. These barriers, driven by structural racism, discrimination and stigma, include poverty, lack of access to quality education, housing, good jobs and comprehensive, high quality health care. Communities that are overwhelmingly impacted by these obstacles are underserved, including communities of color, people with disabilities, members of the LGBTQ+ community, women, and those who live in rural or frontier settings. This activity will define health equity, distinguish between equity, equality, and justice, discuss health equity and inequities, and identify individual strategies to promote health equity.

This activity will explore the recent advances in the diagnosis and treatment of achondroplasia and other causes of disproportionate short stature. It will also share the importance of the interprofessional team to provide insights, perspectives and strategies to support the well-being of both the individual and their family/caregiver(s).