The Diagnostic Odyssey for Individuals With Rare Diseases: Pompe Disease and Other Lysosomal Storage Diseases
Patient and doctors stand near the entrance to a circular maze.
Activity descriptionA disease is considered “rare” if it affects fewer than 200,000 individuals in the US. Uncovering the genetic roots of rare diseases and using those insights to develop new treatments is an ongoing process.
Category
  • Disease Management
  • Health Equity
Format
  • Live Webcasts
Credits
  • AAPC - Coders
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Event date August 9, 2022
The Diagnostic Odyssey for Individuals With Rare Diseases: Kaposiform Lymphangiomatosis and Other Lymphatic Conditions
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of KLA and other lymphatic conditions, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s).
Category
  • Disease Management
  • Health Equity
Format
  • Live Webcasts
Credits
  • AAPC - Coders
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Event date September 15, 2022