The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Caregiver, Leukodystrophies
Patient and doctors stand near the entrance to a circular maze.
Living with a rare disease impacts individuals and their family/caregivers, both physically and mentally. This podcast will share insights and perspectives directly from Erica Barnes and provide strategies that the interprofessional health care team can utilize to better support those impacted by rare diseases such as leukodystrophies.
Category
  • Disease Management
  • Health Equity
Format
  • Podcasts
Credits
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Patient, Pompe Disease Disease
Patient and doctors stand near the entrance to a circular maze.
In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.
Category
  • Disease Management
  • Health Equity
Format
  • Podcasts
Credits
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Direct-to-Consumer Genetic Testing: Providing Personalized Medicine
Pharmacogenomics
This four-part podcast will provide an overview on direct-to-consumer (DTC) genetic testing, the role of HCPs in helping consumers make educated decisions about using these services and the future of DTC genetic testing.
Category
  • Disease Management
  • Wellness
Format
  • Podcasts
Credits
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Complex Medical Conditions in Children: Utilizing Personalized Treatments and Addressing Health Disparities
young African American girl in a bed with her teddy bear next to her, a doctor or nurse in blue scrubs with a stethoscope is next her; they are both smiling
This podcast will focus on the connection between SDoH and how they may impact access to care, treatment and health outcomes for children with rare and CMC. Listeners will be provided with strategies and resources that can address these negative effects. The importance of access to personalized care that they require to live their healthiest lives will be discussed.
Category
  • Disease Management
  • Health Equity
Format
  • Podcasts
Credits
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers