Sickle Cell Disease: Understanding Gene Therapy and Addressing Health Disparities
Sickle cell disease (SCD) is an inherited blood disorder caused by a gene mutation that leads to the production of abnormal hemoglobin that distorts red blood cells into a crescent or sickle shape. Complications of SCD are lifelong and can be life threatening. New gene therapies promise a potential cure for SCD by subtly altering the genetic information in cells. Health disparities and limited resources among individuals with SCD, particularly in low-income and rural communities, are challenging and can lead to limited access to SCD centers and worse outcomes. This activity will discuss the effects and complications of SCD, the prevalence of SCD in different racial and ethnic groups and the role of gene therapy as treatment. Health disparities and challenges in accessing specialized care will also be addressed.
This activity is provided by OptumHealth Education and UnitedHealthcare.
No commercial support was received for this activity.
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This activity is designed to meet the educational needs of case managers, counselors, nurses, nurse practitioners, pharmacists, pharmacy technicians, physicians, PAs, psychologists, social workers, therapists and other health care professionals who treat individuals with SCD.
At the end of this educational activity, participants should be able to:
- Describe SCD and how it affects different organs in the body.
- Discuss the prevalence of SCD in different racial and ethnic groups.
- Describe the role of gene therapy (CRISPR/Cas9) as a treatment for SCD.
- Address health disparities among individuals with SCD related to their socioeconomic status, residential geographic location and access to SCD centers.
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|Click here to download the webcast's transcript.||124.58 KB|
Lanetta Bronté-Hall, MD, MPH, MSPH
President and CEO
Chief Research Officer
Chief Health Officer
The Foundation for Sickle Cell Disease Research
About the presenter
Dr. Lanetta Bronté-Hall is responsible for strategic planning, scientific and administrative oversight of the Foundation for Sickle Cell Disease Research (FSCDR), an independent full-service outpatient medical treatment and clinical trials center that offers medical care and coordinated care for underserved populations. She is a leading national and international researcher and population health scientist in the field of sickle cell disease, rare blood disorders, community-based participatory research and chronic disease management. Dr. Bronté-Hall has extensive experience in developing programs that are closely aligned with the recruitment and retention of underserved and underrepresented populations for treatment of sickle cell disease and breast cancer, research and clinical trials. Dr. Bronté-Hall held a faculty appointment at the University of Miami, Miller School of Medicine as an associate professor in the Department of Public Health Sciences, Department of Health Services Research and Policy. Dr. Bronté-Hall works tirelessly to create an environment of trust, sustainability and relevance, which has significantly increased participation in research by all members of the community.
Sarah Chart, RN
Rebecca Gleason, RN, CCM
Disclosures of relevant financial relationships
In accordance with the Accreditation Council for Continuing Medical Education's (ACCME) Standards for Integrity and Independence in Accredited Continuing Education, OptumHealth Education (OHE) requires all those in control of educational content to disclose their financial relationships with ineligible companies within the prior 24 months. Ineligible companies are defined by the ACCME as companies whose primary business is producing, marketing, selling, re-selling, or distributing health care products used by or on patients. Individuals must disclose all financial relationships, regardless of the amount, with ineligible companies and regardless of their view of the relevance of the relationship to the education. OHE ensures that the content is independent of commercial bias.
The activity faculty or planners have no financial relationships to disclose.
Method for calculating CE credit
CE credit was calculated by the complexity of content.
In support of improving patient care, this activity has been planned and implemented by OptumHealth Education and UnitedHealthcare. OptumHealth Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE) and the American Nurses Credentialing Center (ANCC), to provide continuing education for the health care team.
Credit designation statements
This activity was planned by and for the health care team, and learners will receive 1.00 Interprofessional Continuing Education (IPCE) credits for learning and change.
The participant will be awarded up to 1.00 contact hour(s) of credit for attendance and completion of supplemental materials.
The American Academy of Nurse Practitioners Certification Program (AANPCP) accepts credit from organizations accredited by the ACCME and ANCC.
This activity is approved for 1.00 contact hour ([0.10] CEU) in states that recognize ACPE.
Attending the full program will earn 1.00 contact hour.
Unique Activity Number(s): JA0007123-9999-21-189-H04-P/T
OptumHealth Education designates this enduring activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The American Academy of Physician Assistants (AAPA) accepts credit from organizations accredited by the ACCME.
The Commission for Case Manager Certification has approved this program for a maximum of 1.00 clock hours for Certified Case Managers (CCM).
OptumHealth Education is approved by the American Psychological Association (APA) to offer continuing education for psychologists. OptumHealth Education maintains responsibility for this program. 1.00 CE hour.
As a Jointly Accredited Organization, OptumHealth Education is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. OptumHealth Education maintains responsibility for this course. Social workers completing this course receive 1.00 enduring continuing education credits.
Counselors and/or marriage and family therapists
CA: The Board of Behavioral Sciences has deferred CE course approvals to APA and ASWB for its licensees. See those approvals under Psychologists and Social Workers.
Other States: If your state is not specifically listed, nearly all state Counselor and MFT boards accept either APA or ASWB approval, or are reciprocal with other state licensing board approvals, such as those listed below. Check with your board to be sure.
A certificate of attendance will be provided to learners upon completion of activity requirements, enabling participants to register with licensing boards or associations that have not been preapproved for credits. To apply for credit types not listed above, participants should use the procedure established by the specific organization from which they wish to obtain credit.
- 1.00 ACPE - Pharmacists
- 1.00 ACPE - Pharmacy Technicians
- 1.00 AMA - Physicians
- 1.00 ANCC - Nurses
- 1.00 APA - Psychologists
- 1.00 Attendance - General Attendance
- 1.00 CCMC - General - Case Managers
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