Duchenne Muscular Dystrophy: Utilizing Personalized Treatments and Addressing Health
Duchenne muscular dystrophy (DMD) has received recent national media attention. A rare genetic disorder of progressive muscular weakness, DMD typically affects males. Muscle weakness is usually noticeable in early childhood and most children with DMD use a wheelchair by their early teens. Individuals with DMD do not have typical life expectancy. Despite medical advances, survival beyond the third decade is uncommon. Utilizing personalized treatments and emerging therapy approaches have shown real promise in its treatment, but inequities in health care are contributing to inferior outcomes for some individuals with DMD. This activity will discuss emerging therapies for DMD and the importance of incorporating a personalized interprofessional care plan, along with the role of health disparities and how these impacts access to care and outcomes for these individuals.
This activity is provided by OptumHealth Education and UnitedHealthcare.
No commercial support was received for this activity.
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This activity is designed to meet the educational needs of case managers, counselors, nurses, nurse practitioners, pharmacists, pharmacy technicians, physicians, PAs, psychologists, social workers, therapists and other health care professionals (HCPs) who care for individuals with DMD.
At the end of this educational activity, participants should be able to:
- Describe DMD and the interprofessional care that is necessary for optimal outcomes.
- Explain different emerging therapies and how to incorporate these considerations into a personalized treatment plan.
- Discuss the prevalence of DMD in different racial and ethnic groups.
- Address health disparities among individuals with DMD related to their socioeconomic status, residential geographic location and access to DMD centers.
- Recognize other environmental factors that impact outcomes for individuals with DMD.
Ann H. Tilton, MD, FAAN
Professor of Neurology and Pediatrics
Section Chair of Child Neurology
Louisiana State Health Science Center
Director of the Rehabilitation Center
Director of the Comprehensive Spasticity Program
Children's Hospital of New Orleans
New Orleans, LA
About the presenter
Dr. Ann H. Tilton is currently the past president of the Child Neurology Foundation. She has been actively involved with the American Academy of Neurology (AAN) Board of Directors, where she served as the vice president of the AAN. Her special interests include neurorehabilitation, neuromuscular disorders and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone. One of her priorities is also residency education. Dr. Tilton's interest in children with disabilities extends to the American Academy of Pediatrics where she served on the National Council for Children with Developmental Disabilities. Additionally, she is a director of the Muscular Dystrophy Association at Children’s Hospital of New Orleans and is active in the care of children with muscle and nerve disorders.
Dr. Tilton has been board certified by the American Board of Pediatrics, the American Board of Psychiatry and Neurology with special qualifications in child neurology and the American Board of Psychiatry and Neurology in clinical neurophysiology. She has published on numerous topics and has spoken nationally and internationally on child neurology, rehabilitation and spasticity management.
Sarah Chart, RN
Rebecca Gleason, RN, CCM
Disclosures of relevant financial relationships
In accordance with the Accreditation Council for Continuing Medical Education's (ACCME) Standards for Integrity and Independence in Accredited Continuing Education, OptumHealth Education (OHE) requires all those in control of educational content to disclose their financial relationships with ineligible companies within the prior 24 months. Ineligible companies are defined by the ACCME as companies whose primary business is producing, marketing, selling, re-selling, or distributing health care products used by or on patients. Individuals must disclose all financial relationships, regardless of the amount, with ineligible companies and regardless of their view of the relevance of the relationship to the education. OHE ensures that the content is independent of commercial bias.
Dr. Tilton has disclosed the following relationships:
Ipsen: Advisory board and consultant
Allergan: Advisory board
The remaining activity faculty or planners have no financial relationships to disclose.
All relevant financial relationships have been mitigated.
Method for calculating CE credit
CE credit was calculated by the complexity of content.
In support of improving patient care, this activity has been planned and implemented by OptumHealth Education and UnitedHealthcare. OptumHealth Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE) and the American Nurses Credentialing Center (ANCC), to provide continuing education for the health care team.
Credit designation statements
This activity was planned by and for the health care team, and learners will receive 1.00 Interprofessional Continuing Education (IPCE) credits for learning and change.
The participant will be awarded up to 1.00 contact hour(s) of credit for attendance and completion of supplemental materials.
The American Academy of Nurse Practitioners Certification Program (AANPCP) accepts credit from organizations accredited by the ACCME and ANCC.
This activity is approved for 1.00 contact hour ([0.10] CEU) in states that recognize ACPE.
Attending the full program will earn 1.00 contact hour.
Unique Activity Number(s): JA0007123-9999-21-277-H01-P/T
OptumHealth Education designates this enduring activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
The American Academy of Physician Assistants (AAPA) accepts credit from organizations accredited by the ACCME.
The Commission for Case Manager Certification has approved this program for a maximum of 1.00 clock hours for Certified Case Managers (CCM).
OptumHealth Education is approved by the American Psychological Association (APA) to offer continuing education for psychologists. OptumHealth Education maintains responsibility for this program. 1.00 CE hour.
As a Jointly Accredited Organization, OptumHealth Education is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. OptumHealth Education maintains responsibility for this course. Social workers completing this course receive 1.00 enduring continuing education credits.
Counselors and/or marriage and family therapists
CA: The Board of Behavioral Sciences has deferred CE course approvals to APA and ASWB for its licensees. See those approvals under Psychologists and Social Workers.
Other States: If your state is not specifically listed, nearly all state Counselor and MFT boards accept either APA or ASWB approval, or are reciprocal with other state licensing board approvals, such as those listed below. Check with your board to be sure.
A certificate of attendance will be provided to learners upon completion of activity requirements, enabling participants to register with licensing boards or associations that have not been preapproved for credits. To apply for credit types not listed above, participants should use the procedure established by the specific organization from which they wish to obtain credit.
- 1.00 ACPE - Pharmacists
- 1.00 ACPE - Pharmacy Technicians
- 1.00 AMA - Physicians
- 1.00 ANCC - Nurses
- 1.00 APA - Psychologists
- 1.00 Attendance - General Attendance
- 1.00 CCMC - General - Case Managers
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