Patient and doctors stand near the entrance to a circular maze.

The Diagnostic Odyssey for Individuals With Rare Diseases: Kaposiform Lymphangiomatosis and Other Lymphatic Conditions

September 15, 2022

Activity description

A disease is considered “rare” if it affects fewer than 200,000 individuals in the US. Uncovering the genetic roots of rare diseases and using those insights to develop new treatments is an ongoing process. Kaposiform lymphangiomatosis (KLA) is a rare, life-threatening congenital lymphatic malformation. Diagnosis is often delayed due to complex indistinct symptoms, but recently emerging diagnostic tools and therapies are on the horizon. Living with a rare disease impacts both the individual and their family/caregivers both physically as well as mentally. This activity will explore recent advances in the diagnosis and treatment of KLA and other lymphatic conditions, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s).

Provided by
This activity is provided by Optum Health Education and UnitedHealthcare.

Commercial support
No commercial support was received for this activity.

Required hardware/software
Please ensure you are using the web-browser Chrome and disable any pop-up blocking software. Click here for information on how to enable pop-ups.

Target Audience

This activity is designed to meet the educational needs of case managers, counselors, nurses, nurse practitioners, pharmacists, pharmacy technicians, physicians, PAs, psychologists, social workers, therapists and other health care professionals (HCPs) who care for individuals with KLA.

Learning Objectives

At the end of this educational activity, participants should be able to:

  • Describe the diagnostic journey for individuals with KLA and other lymphatic conditions.
  • Explain emerging diagnostic tools and therapies, including clinical trials for KLA and other lymphatic conditions.
  • Discuss challenges and barriers in the diagnosis and treatment of KLA as well as the associated physical and mental health issues.
  • Incorporate individual and caregiver engagement in shared decision-making.
  • Summarize interprofessional team strategies for improving coordination and communication to support the well-being of both the individual and their family/caregiver(s).
Activity summary
Available credit: 
  • 1.00 AAPC - Coders
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
Activity opens: 
06/27/2022
Activity expires: 
10/15/2022
Event starts: 
09/15/2022 - 1:00pm EDT
Event ends: 
09/15/2022 - 2:00pm EDT
Rating: 
0

Presenter
Dr. Denise Adams blonde hair is down and she is wearing a black tee-shirt, grey sweater, and gold necklace. She is facing and smiling at the camera.Denise Adams, MD
Director of the Complex Vascular Anomalies Program (CVAP)
Pediatric Hematologist-Oncologist
Alan R. Cohen Endowed Chair in Pediatrics
Professor of Pediatrics at the University of Pennsylvania Perelman School of Medicine
Children's Hospital of Philadelphia
Philadelphia, PA

About the presenter
Dr. Adams is a prominent pediatric hematologist-oncologist. She is the Director of the Comprehensive Vascular Anomalies Program (CVAP), a cutting-edge, multidisciplinary program that seeks breakthrough treatments and cures for children, adolescents and young adults with rare, life-threatening tumors and malformations of the vasculature, which includes the arteries, veins, capillaries, lymphatics and combined lesions.
 
As a leading expert in the field, Dr. Adams is actively engaged in clinical and translational research on complex vascular anomalies and regularly publishes studies in leading journals on the topic. She has received numerous awards for her teaching and mentorship and for her research and clinical accomplishments. Hospitals, universities and conferences around the world have invited her to speak on the topic of vascular anomalies, recognizing her expertise in this area.

Activity planners
Robin K. Blitz, MD
Medical Director
Family Engagement Center / Special Needs Initiative / Complex Health Solutions
UnitedHealthcare 

Sarah Chart, RN
Vice President
Optum Health Education

Rebecca Gleason, RN, CCM
Activity Manager
Optum Health Education

Disclosures of relevant financial relationships
In accordance with the Accreditation Council for Continuing Medical Education's (ACCME) Standards for Integrity and Independence in Accredited Continuing Education, Optum Health Education (OHE) requires all those in control of educational content to disclose their financial relationships with ineligible companies within the prior 24 months. Ineligible companies are defined by the ACCME as companies whose primary business is producing, marketing, selling, re-selling, or distributing health care products used by or on patients. Individuals must disclose all financial relationships, regardless of the amount, with ineligible companies and regardless of their view of the relevance of the relationship to the education. OHE ensures that the content is independent of commercial bias.

The presenter and planners have no financial relationships to disclose.

Accreditation statement
Joint Provider LogoIn support of improving patient care, this activity has been planned and implemented by Optum Health Education and UnitedHealthcare. Optum Health Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE) and the American Nurses Credentialing Center (ANCC), to provide continuing education for the health care team.

Credit designation statements
IPCE Credit LogoThis activity was planned by and for the health care team, and learners will receive 1.00 Interprofessional Continuing Education (IPCE) credits for learning and change.

Nurses
The participant will be awarded up to 1.00 contact hour(s) of credit for attendance and completion of supplemental materials.

Nurse practitioners
The American Academy of Nurse Practitioners Certification Program (AANPCP) accepts credit from organizations accredited by the ACCME and ANCC.

Pharmacists/Pharmacy technicians
This activity is approved for 1.00 contact hour ([0.10] CEU) in states that recognize ACPE.
Attending the full program will earn 1.00 contact hour.
Unique Activity Number(s): JA0007123-9999-22-160-L01-P/T

Physicians
Optum Health Education designates this live activity for a maximum of 1.00 AMA PRA Category 1 Credit(s). Physicians should claim only the credit commensurate with the extent of their participation in the activity.

PAs
The American Academy of Physician Assistants (AAPA) accepts credit from organizations accredited by the ACCME.

AAPC-certified coders
AAPC will honor 1-for-1 CEUs for any live event offering CME credit or AMA PRA Category 1 Credit™. A certificate of attendance or completion is necessary to show participation. The certificate will give the total CMEs possible for the offering. Physicians are advised to claim only the actual hours that they were present during the education. We ask that AAPC-certified members abide by this request also. One hour of instruction is worth 1 CEU.

Case managers
The Commission for Case Manager Certification has approved this program for a maximum of 1.00 clock hours for Certified Case Managers (CCM).

Psychologists
Optum Health Education is approved by the American Psychological Association (APA) to offer continuing education for psychologists. Optum Health Education maintains responsibility for this program. 1.00 CE hour.

Social workers
ACE LogoAs a Jointly Accredited Organization, Optum Health Education is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. Optum Health Education maintains responsibility for this course. Social workers completing this course receive 1.00 live continuing education credits.

Counselors and/or marriage and family therapists
CA: The Board of Behavioral Sciences has deferred CE course approvals to APA and ASWB for its licensees. See those approvals under Psychologists and Social Workers.
Other States: If your state is not specifically listed, nearly all state Counselor and MFT boards accept either APA or ASWB approval, or are reciprocal with other state licensing board approvals, such as those listed below. Check with your board to be sure.

Attendance
A certificate of attendance will be provided to learners upon completion of activity requirements, enabling participants to register with licensing boards or associations that have not been preapproved for credits. To apply for credit types not listed above, participants should use the procedure established by the specific organization from which they wish to obtain credit.

Available Credit

  • 1.00 AAPC - Coders
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
Please login to register.

Activity date/time: This live webcast will be held on Thursday, September 15, 2022, from 1–2 p.m. ET (12–1 p.m. CT; 11 a.m.–12 p.m. MT; 10–11 a.m. PT).

Registration confirmation: Registrants will receive an email confirmation upon successful completion of registration. This confirmation will be sent to the email address associated with your optumhealtheducation.com account. If you do not receive a confirmation email within 1 hour after registering, please contact moreinfo@optumhealtheducation.com.

Fees: There are no fees for participating in or receiving credit for this activity.

Questions: Email moreinfo@optumhealtheducation.com.