Advances in Gene Therapy for Sickle Cell Disease and Thalassemia
This session will examine the genetic approaches being explored for these diseases, such as the introduction of a corrected or modified β-globin gene and gene-sequence editing. It will also explore the genetic modalities utilized, such as genome-editing technologies including the clustered regularly interspaced short palindromic repeats (CRISPR)-Cas9 gene-editing system and lentiviral vectors. The safety, efficacy and challenges associated with these therapies will also be outlined.
Category
  • Disease management
  • Oncology
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
Psychosocial Considerations in Post-Hematopoietic Stem Cell Transplantation
This activity will discuss the current approach for screening and management of these complications and will review data regarding the negative associations among psychological distress, health outcomes, successful HSCT, and increased mortality. Barriers in the delivery of psychosocial care and care models to address these issues will also be outlined.
Category
  • Behavioral health
  • Disease management
  • Oncology
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
New Trends in the Management of Asthma and Chronic Obstructive Pulmonary Disease
This activity will provide participants with insight into newer approaches that effectively integrate standard interventions into management plans tailored to the individual’s particular symptoms, review the value of pulmonary rehabilitation, and outline the effective evaluation of therapeutic responses.
Category
  • Disease management
Format
  • Webcasts
Credits
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 Attendance - General Attendance
Systemic Mastocytosis: Diagnostic and Therapeutic Updates
Woman in green top with glasses and grey hair showing her irration/rash on her arm to her health care professional. Health care professional is woman wearing a white lab coat.
This activity will review the symptoms and signs of SM, provide an overview of new and current therapies and identify SM guideline updates. The value of an interdisciplinary team–based approach along the continuum of care for affected individuals will also be discussed as a definitive step toward optimizing outcomes. 
Category
  • Disease management
  • Rare diseases
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 CDR - Dietitians
Advanced Degenerative Joint Disease and Chronic Lower Back Pain: Evidence-Based Approaches to Care
This activity will provide participants with insight into newer approaches that effectively integrate standard interventions into management plans tailored to the individual’s particular symptoms, review the value of pulmonary rehabilitation, and outline the effective evaluation of therapeutic responses.
Category
  • Disease management
Format
  • Webcasts
Credits
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 Attendance - General Attendance
The Diagnostic Odyssey for Individuals With Rare Diseases: Pompe Disease and Other Lysosomal Storage Diseases
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of Pompe disease and other LSDs, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s) and highlight the role of the interprofessional team in evaluating and improving care for patients with these conditions.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Patient, Pompe Disease (Podcast)
Patient and doctors stand near the entrance to a circular maze.
In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Podcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Achondroplasia and Other Causes of Disproportionate Short Stature
Patient and doctors stand near the entrance to a circular maze.
This activity will explore the recent advances in the diagnosis and treatment of achondroplasia and other causes of disproportionate short stature. It will also share the importance of the interprofessional team to provide insights, perspectives and strategies to support the well-being of both the individual and their family/caregiver(s).
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
Managing Urinary Incontinence
This activity will highlight the prevalence of UI; provide effective communication and shared decision-making techniques; and discuss how to assess, treat and provide follow-up care for UI including available resources to support care and management.
Category
  • Disease management
  • Older adults
  • Wellness
Format
  • Webcasts
Credits
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 Attendance - General Attendance
Unlocking Patient-reported Outcomes to Advance Quality, Experience and Decision Making
This activity will explore the value of PRO measures in the health system and discuss methods of optimally integrating these measures. It will discuss strategies that the health care team and health system can use to interpret and apply PRO data to add value to current care delivery practices.
Category
  • Disease management
Format
  • Webcasts
Credits
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 Attendance - General Attendance

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