Duchenne Muscular Dystrophy: Utilizing Personalized Treatments and Addressing Health
This activity will discuss emerging therapies for DMD and the importance of incorporating a personalized interprofessional care plan, along with the role of health disparities and how these impacts access to care and outcomes for these individuals.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Caregiver, Leukodystrophies (Podcast)
Patient and doctors stand near the entrance to a circular maze.
Living with a rare disease impacts individuals and their family/caregivers, both physically and mentally. This podcast will share insights and perspectives directly from Erica Barnes and provide strategies that the interprofessional health care team can utilize to better support those impacted by rare diseases such as leukodystrophies.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Podcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Caregiver, Lymphangiomatosis (Podcast)
Patient and doctors stand near the entrance to a circular maze.
This podcast will share insights and perspectives directly from Diane Bomberg and provide strategies that the interprofessional health care team can utilize to better support those impacted by rare diseases such as lymphangiomatosis.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Podcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 ASWB - Social Workers
The Challenging Journey to Diagnosis: A Personal Experience Panel
This presentation exams the challenges surrounding rare-disease diagnosis and treatment, delving further into the significant impact of the diagnostic odyssey on adults, children, and their families as they seek care for their rare conditions. A panel of individuals speak about the challenges of their own rare-disease odysseys and provide insight into the pronounced effects their prolonged and necessary diagnostic pursuits have had on their personal lives, finances, and physical and mental health.
Category
  • Disease management
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
Addressing the Unpredictable Diagnostic Odyssey of Rare Disease
This presentation addresses the needs for improved access to care, new advances in rare-disease diagnosis, and treatments emerging with the rise of personalized precision medicine. New possibilities for collaboration among medicine, research and drug-development organizations are also discussed.
Category
  • Disease management
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 CDR - Dietitians
  • 1.00 ASWB - Social Workers
Systemic Mastocytosis: Diagnostic and Therapeutic Updates
Woman in green top with glasses and grey hair showing her irration/rash on her arm to her health care professional. Health care professional is woman wearing a white lab coat.
This activity will review the symptoms and signs of SM, provide an overview of new and current therapies and identify SM guideline updates. The value of an interdisciplinary team–based approach along the continuum of care for affected individuals will also be discussed as a definitive step toward optimizing outcomes. 
Category
  • Disease management
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 CDR - Dietitians
Medical Mysteries Revealed: Unraveling the Secrets of Rare and Undiagnosed Diseases
This activity will explore the latest approaches and tools for diagnosing and managing rare diseases. It will delve into cutting-edge genetic-sequencing technologies and advanced data analytics that can assist and guide diagnosis. Participants will also learn about interdisciplinary teams and patient advocacy and the impact they have on solving these complex medical problems.
Category
  • Disease management
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.25 ACPE - Pharmacists
  • 1.25 ACPE - Pharmacy Technicians
  • 1.25 ADA - CERP (Dentists/Allied Dental Staff)
  • 1.25 AMA - Physicians
  • 1.25 ANCC - Nurses
  • 1.25 APA - Psychologists
  • 1.25 Attendance - General Attendance
  • 1.25 CDR - Dietitians
  • 1.25 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Pompe Disease and Other Lysosomal Storage Diseases
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of Pompe disease and other LSDs, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s) and highlight the role of the interprofessional team in evaluating and improving care for patients with these conditions.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 PRC - Philippine Council of Nursing
  • 1.00 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Patient, Pompe Disease (Podcast)
Patient and doctors stand near the entrance to a circular maze.
In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Podcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Leukodystrophies
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of leukodystrophies, including current clinical trials. It will also share insights and perspectives from individuals and their family/caregiver(s) and provide strategies to support their well-being.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • On-demand Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 PRC - Philippine Council of Nursing
  • 1.00 ASWB - Social Workers

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