The Diagnostic Odyssey for Individuals With Rare Diseases: Pompe Disease and Other Lysosomal Storage Diseases
Patient and doctors stand near the entrance to a circular maze.
Activity descriptionA disease is considered “rare” if it affects fewer than 200,000 individuals in the US. Uncovering the genetic roots of rare diseases and using those insights to develop new treatments is an ongoing process.
Category
  • Disease Management
  • Health Equity
Format
  • Live Webcasts
Credits
  • AAPC - Coders
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Event date August 9, 2022
Patient Experience and Satisfaction: Consumer Assessment of Healthcare Providers and Systems (CAHPS) and Health Outcome Survey (HOS)
How you treat patients, the words you choose, and the provision of care directly influence your patients' perception of the care they receive and help improve how they respond to the surveys. By honoring and respecting patients through genuine care, compassion and concern, patients' experience should improve over time. This activity will provide an overview of CAHPS and HOS surveys as well as strategies to improve the patient experience. 
Category
  • Disease Management
Format
  • Online Education
Credits
  • AAFP - Family Physicians
  • AAPC - Coders
  • AMA - Physicians
  • ANCC - Nurses
  • Attendance - General Attendance
The Diagnostic Odyssey for Individuals With Rare Diseases: Kaposiform Lymphangiomatosis and Other Lymphatic Conditions
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of KLA and other lymphatic conditions, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s).
Category
  • Disease Management
  • Health Equity
Format
  • Live Webcasts
Credits
  • AAPC - Coders
  • ACPE - Pharmacists
  • ACPE - Pharmacy Technicians
  • AMA - Physicians
  • ANCC - Nurses
  • APA - Psychologists
  • Attendance - General Attendance
  • CCMC - General - Case Managers
  • ASWB - Social Workers
Event date September 15, 2022